Diagnosis Anxiety
The process of making an accurate cancer diagnosis can be one of the scariest, most frustrating parts of the entire cancer experience. The diagnostic process for cancer puts people into a constantly shifting state of limbo, sometimes even for weeks. You go from office to office, seeing all kinds of specialists, being poked, prodded, dyed, stuck, claustrophobized and squeezed. At each point you hope to get some definitive word about what's wrong, but they just send you for another test!
Experiencing the "Diagnostic Hedge"
You wait anxiously for results that you hope are going to give you a real diagnosis, only to run up against the radiologists' and pathologists' favorite plant - the hedge! "This is what it looks like," the report reads, "but maybe it's this other thing. Or not." It's enough to make you want to scream! Each test you have is designed to help determine how big or small a problem you actually have, and often people hang on every word of the report. When you get to the conclusion and read "can't completely rule out the possibility..." or some other hedge, your anxiety just increases
When it comes to cancer diagnosis, patients tend to be black and white thinkers. It either is or isn't. But diagnosing a complex disease like cancer is not black and white. Rather than instantly appearing, it's more like a Polaroid picture that is slowly developing. Each poke, prod and test adds one more vital piece to the developing clinical picture which identifies the type, stage and grade of the cancer. Rather than giving a definitive answer about what it is, it may rule out something and point to other possibilities. Getting this accurate and clear picture is critical for determining your best treatment options. But it's an emotionally, as well as physically, trying period for you.
Overcoming "Diagnosis Anxiety"
When you feel overwhelmed, or fear seems to be taking over, it's really useful to make a plan and take action. Here are some tips for dealing with "diagnosis anxiety":
1. Begin to recruit your support team. Don't even think about trying to do this alone, or just with your spouse. Start asking people you trust to do certain "jobs" on your support team. You will want someone to help do research, someone to go with you to all your appointments, another person to field telephone calls. You should also begin to line up professional help as well, i.e., a coach or cancer-savvy therapist, a massage therapist, acupuncturist, even a dietician to help you adjust your diet. This early intervention will pay great dividends as you go forward.
2. Resist terriblizing. This happens when you let your thoughts run wild about cancer and treatment. "What if" thoughts and obsessing about the future are not healthy, or helpful, for you. Bring yourself back to this day, this moment when you find yourself worrying about what might happen. Breathe through the fear and anchor yourself to today.
3. Remember what has worked for you in the past. Think about how you have coped with disturbing situations in the past, and write down the skills you used to help yourself through them. They may well work again for you during cancer diagnosis and treatment.
4. Adjust your expectations. Don't try to figure out what each result means or doesn't mean. Remind yourself that this is one piece of an emerging picture of your cancer diagnosis, and it's too soon to know anything.
5. Get two big three-ring binders and packs of dividers. Get paper copies of every diagnostic test, study and consultation report to put in one binder. Then put all your insurance receipts (EOBs) and bills in the other organized by date.
...to be continued
All the best,
Judith Frost
http://www.cancer-coach.com